3/8/16 – 4 days post surgery

Quick update for family, friends, and fans

As Judah’s nurses might expect, his tummy and his need to get out of bed are the biggest issues. Even though he is LIQUORED UP, our little bear fights through it and tries to move around (BIG no no with the breathing tube). And because he’s got plenty of meds going,┬áhis belly has stopped. So he’s getting nutrition in a way that’s a bit more invasive.

But he’s been mostly comfortable this week, and our team is AWESOME at problem solving! Continue reading

Monday 12/17

Almost a week since our last update, and things have been moving along smoothly with little change. Mostly calm days have allowed for plenty of play time, as well as physical therapy, and speech therapy to help us learn to feed again. Doctors and nurses continue to come in and play with Judah and tell him how wonderful he looks. Continue reading

Tuesday 12/11

In the last few days and weeks, Judah has shown some great steps developmentally. Yesterday, we celebrated his 3 month birthday, sadly, still in the CICU. But with his 3 month birthday, we can see that he is well on track for where he should be as a baby. Each day he spends more and more time playing, learning, and developing. He is sleeping regularly, and active and playful on a regular schedule too. He gets plenty of time to sing and dance with mommy, and play with his toys with daddy. Continue reading

Wednesday 12/5

Judah continues to progress in the CICU, still awaiting transfer to the next facility, The Children’s Home of Pittsburgh. We’ve been given a few dates on when we should expect to go over there, but as the proposed day approaches, Judah has a crazy heart rate, or a medication change, or something to push back our move date a little farther down the calendar. We’re actually ok with this, as we don’t want to rush or move Judah any faster than he is ready to go. Continue reading

Thursday 11/29

Judah has had some great days since his Tracheostomy surgery just over a week ago. Every day he continues to progress, now that he can breath easier. Before the surgery, breathing was difficult for Judah, and he spent a lot of effort, and calories, on just that basic function. Now that he has gone a few days spending a lot less energy on just breathing, the food he takes in can be used to help him heal and grow. He is putting on weight again, this morning weighing in at just over 9lbs. Continue reading

Sunday 11/25

All three of us hope every one of our readers and followers had a wonderful Thanksgiving. We received so many prayers and well wishes, and a great Thanksgiving gift of a happy, awake, and healthier looking by the day baby. Judah had a few great days in a row, which meant Mommy and Daddy got to have some very nice days too. He had a few visitors in town this weekend to wish him a happy thanksgiving, and every day since his Trach and G-Tube surgery on Tuesday has had him looking more comfortable, and being more awake and aware. Continue reading

Tuesday 11/20

Judah has been kept very calm and comfortable over the last few days. Tests continue, but he was mainly sedated and resting, waiting for the chance to get in for a couple of operations this week. He continued to get medications to stabilize his heart rate, a breathing tube to assist respiration, and other drugs just to keep him comfortable and without pain.

Today we got to have a much needed good day, after a lot of waiting. It was a busy day for little J, bright and early at 6am he was taken down for an MRI. Continue reading