Hi! My name is Judah – Welcome to my page!

I was born in September of 2012, and on my first full day alive, September 11th, my pediatrician noticed a funny sound in my heart; a murmur. A little investigation led the doctors to find out that I have a rare congenital heart defect called Truncus Arteriosus. I was quickly rushed away to Children’s Hospital of Pittsburgh.

This blog started as a way to share my updates with family, friends, and loving supporters during my earliest days in the Hospital and my progress through multiple open-heart surgeries, complications requiring ECMO, a tracheotomy, and more.

but eventually recoveries. and finally – after 7 months, release home for the first time.

Getting ready to go

Since then this blog has served as an ongoing journal of my progress, growth, and development into an absolutely amazing 3 year old; including updates of new and future procedures and treatments as well as outings, fun, and my life in general.




Today I am an amazing 6 year old who has fought through a lot to get here. And although I still have challenges to overcome,  I continue to amaze everyone I meet every day. Please use the links on this page to read my story so far, and subscribe to the ongoing updates to continue to follow along. All my love and thanks to my incredible supporters, I surely wouldn’t be where I am today without you.

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